UK FSHD Patient Registry

To help advance the research and development of treatment, therapies and care for all those diagnosed with FSHD.

There are currently 874 patients registered in this database.

The registry is funded by  Muscular Dystrophy UK with support from the TREAT-NMD Alliance and MRC Centre for Neuromuscular Disease.

Muscular Dystrophy UK MRC Center for Neuromuscular Diseases