Newsletters

You will be able to find copies of all published Newsletters in this section.  All participating doctors and patients will receive a copy of the newsletter by e-mail once published.

December 2013

July 2014

June 2017

Leaflets

An information leaflet about the registry is available to download here. You can show this to your family and friends. Please show it to your doctor if they would like more information.

Registry Leaflet